A Cure for Charlie at Chicken N' Pickle
We are delighted to be a Brunch Sponsor for the September 18th "A Cure for Charlie" Pickleball event at Chicken N' Pickle in North Kansas City, MO.
On August 22, 2019 Charlie's family discovered he has a rare genetic disease... so rare, in fact, that it doesn’t even have a name. Right now, it is identified by the affected gene, SLC6A1. They have been searching for answers since that time when he was only a few months old, as Charlie has been affected by tremors, possible seizures (that have now been confirmed as seizures), and delays in milestones. While there have been less than 100 reported cases of SLC6A1 worldwide, some common symptoms of the disease have emerged... physical limitations, autism, mild to severe intellectual disabilities, speech delays, behavioral issues and debilitating epilepsy.